Crouzonforeningen i Danmark
Crouzonforeningen i Danmark

Foreningen

Crouzonforeningen i Danmark er en forening for patienter med Crouzon Syndrom, Saethre-Chotzen Syndrom og Pheiffer Syndrom og deres familier.
 
Foreningen mødes en gang om året til et familiekursus, hvor der tages hånd om alle aspekter ved at have et syndrom.
 
Crouzonforeningen i Danmark blev oprettet i april 1996.

Foreningens formål er at arbejde til fordel for personer ramt af Crouzon Syndrom eller et nært beslægtet syndrom samt deres pårørende.

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